Clinical recommendations
More information at CDSPCystinosisCystinosis Clinical Decision Support Programme (CDSP)
The cystinosis clinical decision support programme (CDSP) is a new project that aims to support healthcare professionals in their daily practice with their cystinosis patients. The project offers educational and practical tools to support management of adolescent and adult patients living with multi-organ effects of cystinosis.
Cystinosis global clinical recommendations
The cystinosis global clinical recommendations have been designed by the steering committee, offering practical advice to improve clinical outcomes for cystinosis patients.1 These guidelines are intended to be complementary to, not a substitution for, existing guidelines and consensus documents.
Explore the cystinosis global clinical recommendations in fullThe recommendations cover a wide range of topics, including:
Clinical guidance and resources
General considerations
Multidisciplinary approach
Patient well-being
as well as:
Fertility impact and family planning
Renal considerations
Nervous system and neurocognitive aspects
Muscle involvement
Ophthalmology
Cardio-respiratory
Endocrine aspects
GI and hepatological involvement
Dermatology
Dental care
Quality of life and psychological aspects
Diet and lifestyle
Explore the sections below to find out more.
Clinical recommendations
Explore the cystinosis Clinical Decision Support Programme (CDSP)
