Clinical recommendationsMore information at CDSPCystinosis
Cystinosis Clinical Decision Support Programme (CDSP)
The cystinosis clinical decision support programme (CDSP) is a new project that aims to support healthcare professionals in their daily practice with their cystinosis patients. The project offers educational and practical tools to support management of adolescent and adult patients living with multi-organ effects of cystinosis.
Cystinosis global clinical recommendations
The cystinosis global clinical recommendations have been designed by the steering committee, offering practical advice to improve clinical outcomes for cystinosis patients.1 These guidelines are intended to be complementary to, not a substitution for, existing guidelines and consensus documents.Explore the cystinosis global clinical recommendations in full
The recommendations cover a wide range of topics, including:
Clinical guidance and resources
as well as:
Fertility impact and family planning
Nervous system and neurocognitive aspects
GI and hepatological involvement
Quality of life and psychological aspects
Diet and lifestyle
Explore the sections below to find out more.
Explore the cystinosis Clinical Decision Support Programme (CDSP)